VoA Foundation Newsletter
July Issue:
National Wellness Month: Sustaining care Across Every Stage
Why Early Detection Matters: A Video from the VoA Foundation
Additional Alzheimer’s Resources
About the VoA Foundation
Get in Touch!
About the VoA Foundation
We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.
Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.
Additional Alzheimer’s Resources
At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:
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Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.
Celebrating Independence and the Right to Affordable, Accessible Care
As July celebrates independence and freedom, it’s also a time to reflect on what true independence means for people living with Alzheimer’s disease and other cognitive illnesses. Freedom is not only about the ability to live autonomously—it’s about access to the care and resources needed to do so with dignity.
Today, too many Americans with Alzheimer’s face barriers to affordable diagnosis and treatment. While progress has been made with new FDA-approved therapies and expanded Medicare coverage, out-of-pocket costs, delayed coverage decisions, and limited access to specialists still prevent many from receiving timely care. For example, nearly half of people with Alzheimer’s or dementia report cost as a major barrier to accessing needed healthcare.
Independence in health means ensuring every person living with Alzheimer’s has access to affordable diagnostic tools, timely treatment, and the ability to plan for their future without financial hardship. Voices of Alzheimer’s continues to advocate for policy reforms that make this right a reality—because independence should not depend on income.
The Bill of Rights for People Living with Alzheimer’s Disease:
The Bill of Rights for People Living with Alzheimer’s Disease, introduced by Voices of Alzheimer’s (VoA) and the VoA Foundation, outlines the fundamental rights that individuals with Alzheimer’s and related disorders are entitled to.
One of its ten rights is the right to affordable, expeditious Medicare and other payer coverage for the full range of screening, diagnostic, and treatment options approved by the FDA for Alzheimer’s disease. This July, as we celebrate freedom and independence, this right reminds us that access to care is a cornerstone of autonomy. Every person living with Alzheimer’s deserves the freedom to seek timely, affordable care without financial or systemic barriers.
Affordable Care Resources for People Affected by Alzheimer's
We’ve compiled a list of resources dedicated to supporting individuals and caregivers in understanding and accessing affordable Alzheimer’s care.
VoA-Led Publication Charts Path to
Early Alzheimer’s Detection
A powerful step forward in the movement for early detection, a new article developed by Voices of Alzheimer’s was recently published in the Journal of Internal Medicine. Titled "Early Detection in Primary Care: Implementing Early Detection of Cognitive Impairment in Primary Care to Improve Care for Older Adults," the peer-reviewed article examines the feasibility and value of early detection of cognitive impairment in primary care.
Authored by a cross-disciplinary group of more than a dozen leading experts, the article makes the case for expanding primary care’s role in the early detection of cognitive impairment and examines how recent advances have made implementation more feasible.
Why Early Detection Matters:
A Video from the VoA Foundation
During Alzheimer’s and Brain Awareness Month, we’re highlighting the importance of annual cognitive screenings — a critical first step toward early diagnosis and better care.
Our new video, created in partnership with families, care partners, and clinicians, shares powerful stories about the impact of catching Alzheimer’s early. It also reminds viewers of their right to a free cognitive assessment through Medicare’s Annual Wellness Visit.
Early detection brings hope, access to treatment, and more time to plan.
