VoA Foundation Newsletter
April Issue:
National Minority Health Month: Addressing Clinical Trial Disparities in Alzheimer's Research
The Importance of Early Detection in Alzheimer’s Disease
Additional Alzheimer’s Resources
About the VoA Foundation
Get in Touch!
About the VoA Foundation
We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.
Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.
The Importance of Early Detection in Alzheimer’s Disease
In case you missed it, the VoA Foundation released a video on “The Importance of Early Detection in Alzheimer’s Disease” highlighting how early detection and intervention can improve outcomes and quality of life.
Additional Alzheimer’s Resources
At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:
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Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.
National Minority Health Month: Addressing Clinical Trial Disparities in Alzheimer's Research
April is National Minority Health Month, a time to address the health disparities that disproportionately affect racial and ethnic minority communities. Black adults are twice as likely, and Hispanic adults 1.5 times as likely to develop Alzheimer’s disease compared to white adults. Yet, they often face systemic barriers to receiving timely and effective care. One of the most pressing challenges is their underrepresentation in clinical research, which directly affects the development of effective treatments for all populations.
Despite making up a large portion of the U.S. population, racial and ethnic minorities are significantly underrepresented in clinical trials. According to the Food & Drug Administration (FDA), in 2020, 75% of clinical trial participants were white, while only 11% were Hispanic, 8% were Black, and 6% were Asian. This lack of diversity skews research findings and their applicability across populations.
Barriers to participation include mistrust of healthcare system, difficulty accessing trial sites, lack of awareness, and inequalities in trial design that create financial, cultural, and medical challenges – factors that prevent many from engaging in research that could improve care. This month serves as a call to action to ensure equitable access to early diagnosis, treatment, and care. To close this gap, we must break down barriers that prevent participation in clinical trials. Expanding diversity in research is essential to ensuring that every person affected by Alzheimer’s disease receives the most effective care possible.
The Bill of Rights for People Living with Alzheimer’s Disease:
The Bill of Rights for People Living with Alzheimer’s Disease, introduced by Voices of Alzheimer’s (VoA) and the VoA Foundation, outlines the fundamental rights that individuals with Alzheimer’s and related disorders are entitled to.
One of its ten rights is the right to barrier-free participation in clinical trials for Alzheimer’s disease. By advocating for greater diversity in research and policy change, we can ensure that all communities benefit from medical advancements and that the rights of all individuals with Alzheimer’s are upheld.
Resources for Clinical Trials in Alzheimer's
We’ve compiled a list of resources dedicated to to clinical trials in Alzheimer's, including opportunities to participate and learn about ongoing studies and research advancements: